There are certain things you expect when you have a baby, and most of them fall into three categories: eating, sleeping, and diapers. Within those categories, especially the last one, is a crapload of variation sometimes even the books don’t tell you about.
Your only choice when the unexpected happens is sink or swim, and since there’s a living, breathing human in the equation and you likely don’t want to spend the rest of your days in the clink, you just gotta keep swimming.
Full disclosure: this post is about the sweetest little girl whose rare disease causes some very uncomfortable situations, so if you’re a tad squeamish or just have a short attention span, skip on ahead to becoming a Chive Charities monthly donor RIGHT HERE. Otherwise, read on…sh*t happens!
Sigh. Isn’t she just perfect? All cheeks and bow and new baby smell. This is Shelby, and at the moment this pic was taken, all was right in the world. She was born in February of 2017 after a picture-perfect pregnancy and “calm, serene” delivery, per her mama Amber. Little did Amber know, this was the calm before the storm.
From the very first day, Shelby had trouble eating. She would eat and throw up, eat and throw up, over and over. And she didn’t have any dirty diapers. This might seem like a win, but it’s actually really, really bad. At six days old, Shelby’s doctor ordered a barium enema to determine if there was a blockage or something more serious going on.
“It was awful – sitting there with my six-day-old baby strapped to a board while they injected fluid into her,” Amber remembers. “It was even worse when, instead of it coming out as an enema should, she vomited it all up. We were scared and realized instantly something was really wrong.”
Tiny and dehydrated, Shelby was admitted to the hospital. She couldn’t feed because she couldn’t eliminate what her body consumed, so it was a race against the clock to figure out what was wrong. A biopsy of her colon revealed Shelby was missing the cells required to help her intestines function properly, and ultimately doctors diagnosed her with Hirschsprung disease.
In addition to being unable to eliminate waste, babies born with Hirschsprung disease have abdominal pain and swelling, vomiting, poor weight gain, and can develop life-threatening complications if not treated quickly. And the treatment isn’t easy – at just two weeks old, Shelby had surgery to remove the part of her colon that lacked the nerve development needed to function properly, and had a colostomy pulled so she could go.
As you can imagine, caring for a newborn with a colostomy bag was a nightmare. But when she was four months old, a specialist in Ohio helped get things on the right track, and Shelby soon underwent another surgery to have her colon reconnected.
It was a rough first year, filled with complications and procedures so difficult I will spare you the details, but through it all, this sweet girl thrived.
It took a while, but she started hitting her milestones.
She started eating solid food and having actual dirty diapers, which was awesome! But it came with a whole new set of complications that make Shelby’s everyday life incredibly complex. Her digestive tract is extremely sensitive, and her family must keep a really close eye on what she consumes to avoid agonizing consequences. Additionally, Shelby’s last surgery left her unable to control her sphincter muscle, so she dirties her diaper eight to 10 times per day. In case you’re wondering, THAT IS A LOT. Without diligent care, she’ll develop the most horrific diaper rash and blistering pain.
“We have to be on top of everything she eats, every single diaper change,” Amber told me. Any deviation from the plan could result in pain and misery no one should endure, let alone an 18-month-old child. It’s not an easy thing for a kid’s own parents to do, can you imagine finding a daycare with staff both willing and equipped to provide that level of detailed care?
Add to that Shelby’s developmental delays due to frequent surgeries and medical setbacks, and it’s nearly impossible to find quality care. Fortunately for Shelby, her parents found just the place to make sure she’s safe and healthy, and help her catch up with other kids her age. The only challenge now is paying for it.
We believe quality, compassionate care is important for everyone, especially people facing unimaginable challenges like Shelby does. So when Amber reached out to Chive Charities for tuition assistance at a dream preschool, we didn’t hesitate for a moment. Thanks to our generous monthly donors, we provided a $10,000 grant to cover a year of Shelby’s care. It’s a step in the right direction and we can’t wait to watch her grow.
“Honestly, it’s scary to think about what may be ahead for her,” Amber said. “For now, we choose to live in the moment, take it as it comes, and be thankful that our baby girl is with us.” Very good advice, Amber. We’re thankful, too.
O.K. Remember how I said I was leaving out details that would make a grown man cry? You’re welcome. But listen: there are many more kids and families facing unthinkable challenges, and while it’s not easy to read, it’s easy to be the one who helps behind the scenes. Become a Chive Charities monthly donor and change lives just like Shelby’s RIGHT HERE.
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News Pictures When you have a kid, sh*t happens (14 Photos)
You don’t have to pack away your bikini just because you’re the wrong side of 20. These body-beautiful stars reveal their secrets to staying in shape and prove you can smoulder in a two-piece, whatever your age. Read on and be bikini inspired!
TEENS
Hayden Panettiere
Size: 8
Age: 18
Height: 5ft 1in
Weight: 8st
To achieve her kick-ass figure, Hayden – who plays cheerleader Claire Bennet in Heroes – follows the ‘quartering’ rule. She eats only a quarter of the food on her plate, then waits 20 minutes before deciding whether she needs to eat again.
Hayden says: “I don’t have a model’s body, but I’m not one of those crazy girls who thinks that they’re fat. I’m OK with what I have.”
Nicollette says: “I don’t like diets – I see it, I eat it! I believe in eating healthily with lots of protein, vegetables and carbs to give you energy.”
kim cattrall
Size: 10-12
Age: 52
Height: 5ft 8in
Weight: 9st 4lb
SATC star Kim swears by gym sessions with Russian kettle bells (traditional cast-iron weights) and the South Beach Diet to give her the body she wants. To avoid overeating, Kim has a radical diet trick – squirting lemon juice on her leftovers – so she won’t carry on picking.
Kim says: “I am no super-thin Hollywood actress. I am built for men who like women to look like women.”
https://thechive.files.wordpress.com/2018/12/when-you-have-a-kid-sht-happens-14-photos-1.jpg?quality=85&strip=info&w=650
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